Monday, April 18, 2011


After I posted this morning, Grace remained pretty stable for a few hours. But then around 3 she started to drop her oxygen sats and raise her blood pressure. It stayed that way for about 2 hours. They track two numbers for oxygen, one is a preductal flow and one is postductal flow. They are supposed to be the same or as close together as possible to measure the pulmonary hypertension. They are both supposed to be 100 or close to it. This morning they had dropped into the 30s and around 3 they dropped inoto the 70s low 80s. They were able to get her stable again with sedation.
Her nurse gave her some eye ointment to keep her from getting scratched corneas and when she did that, Grace's blood pressure went up to 106/158 which is way too high. Right now it's 71/141 much closer to what it needs to be. Anytime she gets upset she raises her pressure and drops sher sats. her vent settings are very high still. Pray that she can stay calm and that her pulmonary hypertension can resolve itself. Its a really huge hurdle that needs to be overcome, its going to be a struggle. right now she is stable but its also very late and quiet and shes very sedated. Pray that she can come down on her vent and nitric and keep her numbers where they need to be and that she can wake up and not freak out. Pray that she overcomes this soon. Pray that her drs and nurses would be able to provide wonderful care with wisdom. Pray for Adam as he goes back to work tomorrow, he is having a hard time with going but it's necessary to work to have a hosue to bring Grace home to! Pray for the boys sicne they are still having a hard time, they don't really understand why this is happening. Please continue to pray for her healing that she would turn a corner overnight and be so much better tomorrow.
she is such and amazing little girl and she is so so strong and such a fighter. She is going to giver her brothers a run for thier money for sure!


  1. I will be offering prayers up to our Heavenly Father tonight for Baby Grace and your family.Our powerful Father has Grace in the palm of His Loving hand.

    "So do not fear, for I am with you, do not be dismayed, for I am your God. I will strengthen you and help you, I will uphold you with my righteous right hand." (Isaiah 41:10)

    "The Lord is my light and my salvation-whom shall I fear? The Lord is the stronghold of my life-of whom shall I be afraid?" ( Psalm 27:1)

    "Praise be to the Lord, to God our Saviour, who daily bears our burdens." (Psalm 68:19)

    "But you are a shield around me, O Lord, you bestow glory on me and lift up my head."
    (Psalm 3:3)
    Barb Heinauer

  2. You have our prayers and our empathy. Praying for sweet Grace to rest/relax and those pulmonary pressures to subside!

    Robert- Clara's dad

  3. Sending support, prayers and encouragement your way. Praying Grace finds strength within herself, within her loving family, caring doctors, and Creator to turn the corner and heal.

    "At that time Jesus said, 'I praise you, Father, Lord of heaven and earth, because you have hidden these things from the wise and learned, and revealed them to little children." (Matthew 11:25)

  4. Miranda,
    Casey has kept me up to date about your little Grace. I pray everyday for your family and for Grace's quick recovery. I love that you write a blog, I found it to be very soothing in a time where I was searching for understanding..I still do. :-)
    You are in our thoughts and Prayers,
    Megan and Lucy

  5. I remember those days when I was so scared to get him upset because that meant sats dropping. I am praying for you all during these hurdles. Sometimes this journey seems it is hurdle after hurdle. Only by God's grace do we get thru. Prayers for things to start to level out. FAST. (((hugs)))

  6. Hoping Grace will heal & overcome these hurdles being thrown at her. Thoughts & Prayers going out to you all.