Sunday, April 17, 2011

The Rollercoaster

Well I said it myself. What a difference a day or a few hours make. Many many prayers needed for Grace this morning. Adam called me and said I needed to get here. Grace has been desatting alot, that means she's not getting enough oxygen. her blood gasses have not been what theyve wanted and theve had to up her vent settings. she is now on 80 ppm of nitric instead of her 20, which had even weaned to 15. There has been mention of putting her back on ECMO, Adam said. Please pray our little girl can pull through this as well. She is on a paralytic (pav) drip now as well, so she cannot wake up. Pray for the upswing to come back, for wisdom for her dr's that they would make the right decisons for her. That those decisions don't lead them to ECMO.


  1. praying hard for you guys *hug*

  2. I check the site every day for news and Grace is in my prayers everyday too.

  3. Praying for Grace!!

    Mom to Andrew
    CDH/ECMO survivor

  4. Continuing to pray very hard for baby Grace, especially that she will not be put on ecmo again. Hopefully your little rockstar can pull through this quickly. My heart goes out to you guys.

  5. To Grace and Grace's family,
    " Since we hav a great high priest....Jesus the Son of God, let us hold firmly to the faith we profess...Let us then approach the throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need. (Hebrews 4:14,16)

    "Though I walk in the midst of trouble, you preserve my life." (Psalm 138:7)

    Continuing to pray for Grace and her family.
    Barb Heinauer