Friday, April 15, 2011


Grace is being decannulated right now. They should be done soon, we hope to hear how it went soon. She is doing well on the oscillator and Nitric. Her blood gasses have been good and her vitals have been stable for the most part. She had her eyes open for her brothers today, they loved that. She is so amazingly wonderful. Often kids and thier parents will stop in to the NICU to say hi, and today there was a little boy who spent 81 days at Holden with CDH. He is now a healthy active 2 year old. It was just nice to see him and talk with his mom for a few minutes. I will try to update more later.


  1. so good to hear!! ((((prayers))))

  2. That is wonderful to hear about Grace's progress. We continue to pray that God will continue to bless Grace and your family.
    Barb Heinauer

  3. Glad to hear that things are doing well so far with being off ecmo. I hope the day when you all can be together will be coming soon. Thoughts & Prayers always!