Tuesday, June 14, 2011


Please pray for poor miss Grace this week. I don't have enough time for a detailed update, but she is starting to expierience withdrawl from her sedatioin. She is very very upset and is desatting alot. She is needing a ton of PRN's. They also tried the Slidenafil again, and think she is reacting to it again so they have stopped. Please pray they can get her PPHN under control with an oral med since she cant stay on Flolan forever.


  1. Come on Miss Grace you can do this!!! Sending lots of positive vibes and prayers your way!!!

  2. Sending prayers for Grace!! The withdrawl is so tough after everything they have already been through. Hoping they can find a drug that will work for the hypertension!

    Stay strong Grace (and mom and dad and brothers)!!! You have come so far!!

    Mom to Andrew-CDH survivor

  3. Praying for you and Grace! Withdraws are hard on both of you. I cried when Garrett went through the worst of it. It sucks -- been there done that. Praying it goes as smoothly as possibly for her --


  4. Withdrawal is awful!!! So hard to watch! I will be praying, praying, praying for her and her family.