I LOVE calling to check on Grace and hearing those above words! Grace has finally decided that maybe the NICU isn't where the cool kids hang out and she should work towards getting out of there! I am so happy and proud of my sweet girl, she has sprinted twice today and didn't even act like anything was going on, and her gasses during and after were awesome! She is doing so good! They will sprint again tomorrow morning and get a gas and then Peds Surg will discuss what the next step is! The big E word maybe?! She has been happy and content and sedation is still weaning and Adam held her today and said she didn't even mind the transition! Oh and they discovered that the bug that caused her pnenomonia is pseudomonas, likely due to her ET tube. I guess it's not that uncommon in people intubated and especially for so long. It's also the same thing you could pick up from a hot tub. Ew. So one more reason to get that tube out! So luckily though she was already being treated with the antibiotic that kills that, before they knew so they will keep her on it for I think a 14 day course of Zosyn. Other than that, she is amazing! I know that our downs are not gone for good, I know there will still be some hard and rocky days but I am enncouraged so much with the progress we are making. I know we still have a long way to go before we are discharged and even then the work we will have to do will be immense but I am just tickled pink with where we are right now! Thank you all so much for your thoughts and prayers, keep them coming! Pray that Grace could be extubated and that she will not need reintubation at any point. Pray that her sedation wean continues smoothly! And please pray that her stomach would start to to move things through like it should!
We have an amazing Lord and I am so very thankful for the amazing gift of grace He has given me, my sweet Grace on this earth.
And after you suffer for a short time, God, who gives all grace, will make everything right. He will make you strong and support you and keep you from falling. He called you to share in his glory in Christ, a glory that will continue forever.
1 Peter 5:10