Grace has an ECHO tomorrow to assess her PPHN and see how well the Bosentan is working and then hopefully we can develop a plan for weaning Flolan. Please pray her ECHO is awesome and we can finally start the wean and that her PPHN stays controlled without it. I am so so anxious to just get moving. I just want her home, to have our family whole again.
So please pray for more improvements for Grace, though she has come so so far, she still has so so far to go.
Catching up in here makes my heart so happy!! This CDH journey is difficult but you have MADE it thru the hardest part!!! Praise God!! Prayers that things keep moving forward like they are supposed to.
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