update

After I posted this morning, Grace remained pretty stable for a few hours. But then around 3 she started to drop her oxygen sats and raise her blood pressure. It stayed that way for about 2 hours. They track two numbers for oxygen, one is a preductal flow and one is postductal flow. They are supposed to be the same or as close together as possible to measure the pulmonary hypertension. They are both supposed to be 100 or close to it. This morning they had dropped into the 30s and around 3 they dropped inoto the 70s low 80s. They were able to get her stable again with sedation.
Her nurse gave her some eye ointment to keep her from getting scratched corneas and when she did that, Grace's blood pressure went up to 106/158 which is way too high. Right now it's 71/141 much closer to what it needs to be. Anytime she gets upset she raises her pressure and drops sher sats. her vent settings are very high still. Pray that she can stay calm and that her pulmonary hypertension can resolve itself. Its a really huge hurdle that needs to be overcome, its going to be a struggle. right now she is stable but its also very late and quiet and shes very sedated. Pray that she can come down on her vent and nitric and keep her numbers where they need to be and that she can wake up and not freak out. Pray that she overcomes this soon. Pray that her drs and nurses would be able to provide wonderful care with wisdom. Pray for Adam as he goes back to work tomorrow, he is having a hard time with going but it's necessary to work to have a hosue to bring Grace home to! Pray for the boys sicne they are still having a hard time, they don't really understand why this is happening. Please continue to pray for her healing that she would turn a corner overnight and be so much better tomorrow.
she is such and amazing little girl and she is so so strong and such a fighter. She is going to giver her brothers a run for thier money for sure!